Watch and Wait
At a recent meeting with a representative from The Royal Derby Hospital, myself and a colleague were told they 'firmly advocate the 'Watch and Wait' process for patients with Primary Hyperparathyroidism because it works well with prostate cancer'. When my colleague asked what they are watching and waiting for, the response was; 'for calcium levels to increase.' My colleague explained that her calcium had remained high normal for twelve years before it increased, yet her PTH has been elevated a good while and she has osteoporosis and kidney stones. She also has MEN1 and only one remaining parathyroid gland. She hopes to have that gland shaved soon (not in Derby of course). The watch and wait process is incredibly damaging to the patient, putting them at risk of osteoporosis, kidney stones, heart disease, psychosis, and other very serious consequences. It can be extremely costly to the NHS also having to treat the consequences of untreated primary hyperparathyroidism. So why on earth doesn't somebody with a bit of clout put a stop to it? Please do let us know if you find anybody interested and powerful enough to actually put a stop to this cruel practice.