Hyperparathyroid UK (HPT UK)
The level of calcium does NOT determine the severity of symptoms
It's Not All About the Levels...
The following UK surgeons are recommended based on multiple positive reviews from our members. UK surgeons known to operate on normocalcemic patients are limited, indicated below with an asterisk after surgeons' names. BAETS have not published an audit since 2019, which members have found useful when choosing a surgeon. We hope the audit will soon be reinstated. Until then, we depend entirely upon patient feedback.
Shad Khan * Oxford University Hospitals (ouh.nhs.uk)
Tarek Abdel-Aziz * University College Hospital : University College London Hospitals NHS Foundation Trust (uclh.nhs.uk)
Mr Tarek Abdel-Aziz | Cleveland Clinic London
Matthew Ward * Portsmouth Welcome (porthosp.nhs.uk)
Home | Solent Parathyroid | Portsmouth
Frank Agada * https://www.yorkhospitals.nhs.uk
Mr Frank Agada : Ear, nose and throat surgery (bupa.co.uk)
Alison Waghorn * Royal Liverpool and Broadgreen University Hospitals NHS Trust (rlbuht.nhs.uk)
Jennifer Downs * Bournemouth General Surgery Staff - Royal Bournemouth Hospital - NHS (www.nhs.uk)
Mamun Rashid Bedfordshire Hospitals NHS Foundation Trust
Paul Dent * Home | Croydon Health Services NHS Trust
David Smith Ninewells Hospital Dundee www.nhstayside.scot.nhs.uk
Helen Doran Manchester Salford Royal :: Northern Care Alliance
Enyi Ofo St Georges. www.kingstonhospital.nhs.uk
Tass Malik Plymouth https://www.plymouthhospitals.nhs.uk
Mr Tass Malik | Nuffield Health
Dominique Byrne QEUH Glasgow Hospitals And Services - NHSGGC
Alison Lannigan Wishaw Hospital | NHS Lanarkshire (scot.nhs.uk)
We can recommend surgeons based on experiences from our members but it is still essential for you to chart your levels and do your own research. If you have elevated calcium, elevated PTH, and positive scans, you are a straightforward case for any experienced parathyroid surgeons.
If you have persistent elevated PTH, or inappropriate PTH with normal calcium (and symptoms of PHPT), you need a surgeon who understands normocalcemic primary hyperparathyroidism and is prepared to operate. It is shocking to us how many surgeons still do not accept NCPHPT exists, and refuse surgery. We are aware of some high profile parathyroid surgeons who actively discouraging surgery for people with NCPHPT. Look at our case stories for examples of people whose lives were miserably blighted by poor health for decades with NCPHPT (including my own), yet we have some amazing surgeons who are providing surgical evidence and changing lives by operating on NCPHPT patients.
We have many successful case stories of people post-op who had NCPHPT. Here is a link to BMJ Best practice for Primary Hyperparathyroidism. They clearly state that not everybody with NCPHPT will go on to develop classic PHPT of elevated Ca and PTH. It is really important for doctors and surgeons to recognise this fact. There is NO good reason to 'watch and wait'. https://bestpractice.bmj.com/topics/en-us/133
You are not obliged to stay in your catchment area if your surgeon refuses surgery. Not everybody with NCPHPT will progress to classic PHPT, so it is important to find a surgeon prepared to operate before this disease causes long-term and sometimes irreversible damage to your body.
PLEASE DO NOT GIVE UP.
If you 've had a great experience with a parathyroid surgeon who isn't on our recommended list, please contact us to share your feedback. Equally, please let us know about negative experiences also.
Normohormonal PHPT: Elevated/high normal calcium & non suppressed PTH.
NHPHPT is a distinct form of Primary Hyperparathyroidism. Here is a link from a 2017 study: https://www.medscape.com/medline/abstract/27866715
Here is a case study of a 57 years old asymptomatic patient from the Oxford Journal of Endocrinology: https://academic.oup.com/jcem/article/91/10/3826/2656399.
An extract from the conclusion: Patients with PHPT and either elevated or normal PTH levels present with similar symptoms and calcium levels. The majority of patients with normal PTH have SGD, although adenomas are smaller. This may explain why patients with normal PTH values have less sensitive imaging and more frequently require four-gland exploration.
Primary Hyperparathyroidism can be a very lonely and debilitating disease, especially when friends, family and doctors don't understand how much we are suffering. Reaching out to others who do understand, can help you on your journey to surgery and beyond.
The following surgeons have received positive feedback from our non-UK members:
Dr Babak Larian * http://www.hyperparathyroidmd.com/
Julie Miller Melbourne, Australia
Ming Yew * Perth Australia http://drmingyew.com.au/parathyroid.php
Jesse Pasternak Toronto, Canada: Jesse Pasternak | Department of Surgery (utoronto.ca)
Dean Lisewski Perth Australia https://www.ptcc.com.au/
Leigh Dunbridge Sydney Australia
Scott Albert Syracuse US NY Upstate Hospital. Oncologist specialising in Parathyroidectomy.
Dr Janusic Croatia http://www.drjanusic.com/Pocetna.html
Marlon Guerrero Tucson University Medical Center. Arizona, US.
Pisa Hospital, Tuscany http://www.ao-pisa.toscana.it/
If your surgeon wishes to delay surgery whilst waiting for your levels to increase, or until you have osteoporosis and/or kidney stones, and suggests you are not a priority if you don't have either, please exercise your right to a second opinion. Please find out how many parathyroidectomies per year your proposed surgeon performs. If he/she performs less than 40 a year (ideally 50), please contact us to ask if our members have experience with the same surgeon. It is essential that your surgeon makes every effort to get it right FIRST time. We know too well the consequences of a failed surgery and the difficulty entailed in chasing a second surgery or diagnosis for persistent hyperparathyroidism.
If your surgeon refuses to offer a 4-gland exploration (recommended in NICE guidelines: https://www.nice.org.uk/guidance/NG132), it is important to ask why. It is also important to ask if they test PTH intraoperatively and how soon after surgery they will test calcium and PTH, and it is important to ask about follow up should your surgery not be successful.
We strongly believe all surgeons should offer post op advice in the weeks following surgery rather than simply discharge you back into the care of your GP without instructions for post op care including required blood tests and supplements. We have post op instructions and advice in our files. Please contact if appropriate post op follow up has not been provided.
Many people experience symptoms of a post-op 3rd day calcium crash and will need to supplement with vitamin D, magnesium and increase calcium in the diet, even if their blood calcium levels are adequate.
Please get in touch with us if you are concerned about post op bone remineralisation and how to look after yourself in the days, weeks and months following surgery. We cant stress enough, how important this is. Not everybody will recover immediately from surgery, some take longer. A parathyroidectomy will halt the progress of hyperparathyroidism. if some symptoms persist, we can likely help you to understand why and offer advice and support via our Facebook support group. Go to our Endocrinologists page to see two articles regarding post op hungry bone syndrome,
Normocalcemic PHPT (NCPHPT). I collated and published several NCPHPT studies, information I've learnt over ten years, plus 61 NCPHPT case stories including my own;
It's Not All About the Levels: Normocalcaemic Primary HyperPARAthyroidism (NCPHPT): Amazon.co.uk: Powell, Sallie: 9798357345424: Books
A Christmas parathyroid education, available on Kindle £1.99:
A Normal Christmas: An alternative education about normocalcemic PHPT eBook : Powell, Sallie: Amazon.co.uk: Books