The following UK surgeons are recommended based on multiple positive reviews from our members. UK surgeons known to operate on normocalcemic patients are limited They are indicated below with an asterisk after their names.
BAETS have not published an audit since 2019, making it very difficult for patients when choosing a surgeon (especially with the new measures introduced 1.11.23 offering treatment outside immediate NHS Trusts to beat long waiting times). We hope the audit will soon be reinstated. Until then, we depend entirely upon patient feedback. Please do contact us with feedback and recommendations.
Paul Dent * Home | Croydon Health Services NHS Trust
Frank Agada * https://www.yorkhospitals.nhs.uk
Shad Khan * Oxford University Hospitals (ouh.nhs.uk)
Enyo Ofo St Georges. www.kingstonhospital.nhs.uk
Mamun Rashid Bedfordshire Hospitals NHS Foundation Trust
We can recommend surgeons based on experiences from our members but it is still essential for you to chart your levels and do your own research. If you have elevated calcium, elevated PTH, and positive scans, you are a straightforward case for any experienced parathyroid surgeon.
If you have persistent elevated PTH, or inappropriate PTH with normal calcium, and symptoms of PHPT, you need a surgeon who understands normocalcemic primary hyperparathyroidism and is prepared to operate.
We find it frustrating how many surgeons still do not accept NCPHPT exists, and refuse surgery. We are aware of high profile surgeons who actively discourage surgery for people with NCPHPT. Look at our case stories for examples of people whose lives were miserably blighted by poor health for decades with NCPHPT (including my own), yet we do have some amazing surgeons who are providing surgical evidence and changing lives by operating. Not everybody with NCPHPT will progress to classic PHPT, so it is important to find a surgeon prepared to operate before this disease causes long-term and sometimes irreversible damage to your body. PLEASE DO NOT GIVE UP.
Please do your own research, and ask your doctors to do the same. You are not obliged to stay in your catchment area if your surgeon refuses surgery. Unfortunately, Oxford Hospitals management are not taking out of area patients so count them out.
If you 've had a great experience with a parathyroid surgeon who isn't on our recommended list, please contact us to share your feedback. Equally, please let us know about negative experiences also.
Normohormonal PHPT: Elevated/high normal calcium & non suppressed PTH.
NHPHPT is a distinct form of Primary Hyperparathyroidism. Here is a link from a 2017 study: https://www.medscape.com/medline/abstract/27866715
Here is a case study of a 57 years old asymptomatic patient from the Oxford Journal of Endocrinology: https://academic.oup.com/jcem/article/91/10/3826/2656399.
An extract from the conclusion: Patients with PHPT and either elevated or normal PTH levels present with similar symptoms and calcium levels. The majority of patients with normal PTH have SGD, although adenomas are smaller. This may explain why patients with normal PTH values have less sensitive imaging and more frequently require four-gland exploration.
Primary Hyperparathyroidism can be a very lonely and debilitating disease, especially when friends, family and doctors don't understand how much we are suffering, or how worried we are to find we have read more research than the doctors in charge of our health.
Reaching out to others who do understand, who are on the same path or have recovered after surgery, can help throughout your journey to surgery and beyond. Please do consider joining our online support group. Its likely we have people in your area of the UK too who can offer support and advice.
The following surgeons have received positive feedback from our non-UK members:
Julie Miller Melbourne, Australia
Scott Albert Syracuse US NY Upstate Hospital. Oncologist specialising in Parathyroidectomy.
Dr Janusic Croatia http://www.drjanusic.com/Pocetna.html
Marlon Guerrero Tucson University Medical Center. Arizona, US.
Pisa Hospital, Tuscany http://www.ao-pisa.toscana.it/
Richard Welsh PR Consultant 'FHVG':
"Properly vetting a doctor before surgery is crucial, especially since the result of that surgery affects the quality of life you experience afterward. There are differences in the talents of surgeons, so being equipped to choosing the one you feel most comfortable and confident in is extremely useful."
If your surgeon wishes to delay surgery to wait for your calcium levels to increase, or until you have osteoporosis and/or kidney stones, or if they say other patients are a higher priority, please exercise your right to a second opinion. Find out the number of parathyroid operations per year your proposed surgeon performs. Please feel free to contact us to ask our members about their experiences with the same surgeon.
Surgeons should make every effort to cure you first time. We know too well the consequences of a failed surgery and how hard it can be trying to get a second or surgery for persistent hyperparathyroidism.
If your surgeon refuses to offer a 4-gland exploration (recommended in NICE guidelines: https://www.nice.org.uk/guidance/NG132), it is important to ask why. It is also important to ask if they test PTH intraoperatively and how soon after surgery they will test calcium and PTH, and it is important to ask about follow up should your surgery not be successful.
We strongly believe all surgeons should offer post op advice in the weeks following surgery rather than simply discharge you back into the care of your GP without instructions for post op care including required blood tests and supplements. We have post op instructions and advice in our files. Please contact if appropriate post op follow up has not been provided.
Many people experience symptoms of a post-op 3rd day calcium crash and will need to supplement with vitamin D, magnesium and increase calcium in the diet, even if their blood calcium levels are adequate.
Please get in touch with us if you are concerned about post op bone remineralisation and how to look after yourself in the days, weeks and months following surgery. We cant stress enough, how important this is. Not everybody will recover immediately from surgery, some take longer. A parathyroidectomy will halt the progress of hyperparathyroidism. if some symptoms persist, we can likely help you to understand why and offer advice and support via our Facebook support group. Go to our Endocrinologists page to see two articles regarding post op hungry bone syndrome,
If any clinician believes that sick patients enjoy having to research their condition, please understand that many of us feel we have no option if we are to survive it. Faced with a clinician we are relying on to help us, who isn't up to date, is very daunting. We all understand what 'fighting for my life' implies. Fight or flight is 'an instinctive physiological response to a threatening situation which readies one to resist forcibly or run away.'
An example is when a patient is told that hyperparathyroidism doesn't cause cardiac disease. Oh dear, that is so untrue. Please read the following review, and my latest blog, or do your own research, and catch up with us;
'This review evaluates current studies and relationships between parathyroid disease and the cardiovascular system and highlights the important implications for mortality and morbidity stemming from these disorders'.
The Parathyroid Gland and Heart Disease - PMC (nih.gov)
Normocalcemic PHPT (NCPHPT). I collated and published several NCPHPT studies, amongst information I've learnt over ten years of interacting with thousands of hyperparathyroid patients, plus 61 NCPHPT case stories including my own;
It's Not All About the Levels: Normocalcaemic Primary HyperPARAthyroidism (NCPHPT): Amazon.co.uk: Powell, Sallie: 9798357345424: Books
A Christmas hyperparathyroid adaptation of A Christmas Carol, written by Sallie Powell in 2020 is available on Kindle priced £1.99 and will be available very soon (by the end of November 2023) on paperback;
A Normal Christmas: An alternative education about normocalcemic PHPT eBook : Powell, Sallie: Amazon.co.uk: Books
Hyperparathyroid UK (HPT UK)