Hyperparathyroid UK (HPT UK)
Action4Change
It's NOT All About the Levels...
HPT UK A4C
It's Not
All About the Levels
Est. 02.09.2014
Scroll through our gallery for photos and comments from our members about improvements to quality of life after surgery, chosen to give hope about the benefits of surgery. Please do not give up after a negative clinical appointment, educate yourself about PHPT, and get a second opinion.
Parathyroid glands work like an automatic kettle
When calcium hits a certain level, parathyroid glands switch off
If they don't, a parathyroid surgeon must cut the power supply...
This image combined with Christina's pre op PTH & calcium levels are everything I've campaigned for the last eleven years.
This surgical outcome is evidence that a non suppressed relationship between calcium and parathyroid hormone in symptomatic patients indicates they should be considered as candidates for parathyroid surgery.
PHPT shouldn't be all about the calcium levels, yet the NG132 committee invented the figure 2.85 as the threshold for surgery. I advised NICE before they were published, that this figure would be very damaging and cause harm. Six years on, it is still causing harm, quoted by endocrine gatekeepers throughout the UK.
2.85 has no scientific justification and needs to be abolished from guidelines.
They say a picture can tell a thousand words...
Christina
'Hi, just to let you know I had my four gland exploratory surgery on Tuesday at UCLH.
Calcium pre-op was 2.54 PTH 5.8.
Tarek found one adenoma on the left with another next to it that had dropped down. Intraoperative testing of PTH showed it was still high, so they checked the other side, and found another top right. The fourth one was healthy.
Such amazing care at UCLH - recovering well at home.
Post op Calcium 2.3 PTH 0.6'
When Christina shared her surgery outcome photo in our group, and I saw her pre op levels, my instant response was to shout out, 'YES TAREK!!'
I imagined a huge roar of applause from our group members (approaching 4,700 June 2025), knowing they would feel the same immense gratitude and pride in Tarek Abdel-Aziz for operating on Christina, using IoPTH and performing a bilateral exploration. A perfect example.
Julie Varo
Twelve months post-op, and still feeling great. To all those still being fobbed off, my calcium levels were never overly high. Nothing showed on nuclear scans, just my PTH spiked twice on blood tests.
11 mm adenoma removed by Shad Khan on 14/10/23 and I'm back to climbing (small) mountains.
In February Julie shared with us; On a positive note: 18 weeks post-op and I've just returned from doing a 450 mile solo train trip to the lovely City of Glasgow (and walked 26,800 steps and its not a flat city!) which I would have never been able to do pre-op.
Yes I still have a few twinges and numbness in the operation area but the operation is worth the vast improvement in my health (physical and mental well-being). For those still awaiting diagnosis/operation: keep going, it's worth it in the end.
Sue Sharp
Today marks six months post surgery to remove a 2 cm adenoma. It took four years from diagnosis to surgery (thanks COVID), but I suspect many years of non descriptive symptoms prior to that.
Today my Calcium is down to 2.3, PTH in normal range. Apart from being 2 weeks post COVID, I feel great! My bone pain has gone, the severe gastritis has gone, my mood has lifted. I haven’t slept well since my op and had some weight gain which I’m hoping will improve now my thyroid medication has been tweaked.
But... It’s a journey, my outlook is better.
I have been so grateful for the care I have received, and the advice from this lovely group. I continue to have my bloods monitored. I have a bone scan next week to review my osteopenia. My endocrinologist has discharged me as cured of Primary hyperparathyroidism. Wishing all of you still suffering, and those recovering, a speedy end to your journeys. There is light at the end of the tunnel .
Elaine Ibison
Elaine one week after her parathyroidectomy, July 2022;
'Feeling amazing, positive, hopeful & energetic. Clear mind, no joint pain. Husband says he’s brought a different woman home from Oxford. I can honestly say life couldn’t be better. From life in black & white to life in full on technicolour. Bring it on....'
Katie Millington
Feeling pretty good!! I have some tingles in my hands & feet, so Calcichews and milk for lunch.
It goes to show, they said I'd be unlikely to get tingles because my calcium wasn't 'that high' to begin with. wrong again...
It was lovely to carry a shopping bag today without pain in my elbow. It's the little things!
Barely any discomfort, and I feel so alert. I feel so well I am going to walk my dog soon. I didn't imagine feeling up to that 3 days after surgery!
Claire Holloway
Claire had surgery in January 2021 at Oxford with Shad Khan. Claire was his third normocalcemic hyperparathyroid patient in three months.
I was absolutely thrilled when Claire shared the photograph of the 30 mm adenoma he removed, not only because she would begin to feel so much better, but also because her pre op levels were calcium 2.36, PTH 10.00 and this was a huge victory for normocalcemics. Claire's levels had been higher over the previous ten years, but her symptoms only got worse. I hoped this would open the door for many other normocalcemic patients. It certainly did.
Two photos of Claire; on the left before her surgery and now in 2024. Claire told me she is so grateful to Shad Khan and that her mind and body are now connected and that everybody needs to know that when you are healed, you know it both inside and out.
Tracey Davies
I’m currently on holiday in France. I’ve walked, swam and enjoyed marvellous food. Last night I went to a jazz festival and danced the night away.
Seven weeks ago today was my pre op shout out from Sallie. Then I felt so dreadfully unwell and everyday life was a struggle.
Now all of my symptoms have gone and I’m enjoying my life.
To everyone waiting for surgery, keep going, keep pushing for your right to a healthy life. The other side is fabulous and we all deserve it.
Deborah Webb
'I had my surgery on 19th November 2021 with Steve Shering, in Bridgend. One adenoma was successfully removed, and all other glands were checked as well, and they were normal. Pre-op calcium two weeks before surgery was 3.1mmol/L.
I have not felt as alive as I do today, for a long time. My fatigue, brain fog, heart palpitations, acid reflux, bone pain, insomnia, and constant trips to the loo for a pee have all gone. My post-op calcium was 2.36, I feel awesome and doing everything I can to live my best life now that I’m better.
Hang on in there if you are suffering, thinking of everyone who is yet to get the surgery you so thoroughly deserve.'
Kate Flucker
Kate has had a very long journey following a failed parathyroidectomy nearly 2 decades ago. She joined us when we set up in September 2014 after originally meeting in the US group Parathyroid Disease Support and Awareness. We have followed her journey through 2 more surgeries. Despite being told by some surgeons that her level of 2.38mmol/l, with slightly elevated PTH and vitamin D within range, was unlikely to be hyperparathyroidism, she did not give up. Kate endured over 30 years of kidney stones (over 75 of them). Kate had a second unsuccessful surgery by Mr. Dominique Byrne on Tuesday, June 12th, but is optimistically looking forward to a third, and hopefully final, surgery before the end of the year (2018).
Third time lucky for Kate. Mr. Byrne was determined to find the elusive adenoma. At Kate's post-op appointment, he revealed he found more than he expected to, much more!
Kate found out on 20th March from her pathology report, that Mr. Byrne removed 6 adenomas! 5 small and 1 large. He suggested that during Kate's 1st exploratory op, somehow a parathyroid adenoma split and apparently once split, they double, and though it explained why they did not show up on scans. They were not found when he first operated on Kate. She was also told pathology revealed she had Hashimoto's, which was never diagnosed, as well as thyroid cancer which came as a great shock to Kate, but since he removed her thyroid, no further treatment required.
Kate is really enjoying life again finally after 18 years of being unwell...
Clare Williams
Clare took our post-op advice: Take 3 weeks off work, rest and allow your body to come to terms with the hormonal re-balance. Listen to your body and have calcium, magnesium and vitamin D to hand to assist with bone resorption and symptoms of low calcium. If you are taking calcium and or vitamin D, you should likely also take magnesium. Enjoy ticking off those symptoms as they disappear. Go easy on yourself, people recover at different rates.
Claire; 'If you're pre-op, please please don't give up on yourself. Give yourself a break. You're sick. Really sick. Use your time wisely and know in your heart that it's only temporary'.
'You WILL get there! You WILL be your old self once again. The journey on the other side has its ups and downs too, but it's much happier on this side! Can't wait to see you all here! Sending much love to you all! Keep fighting 'pre-oppers'. Your time will come'.
Look at me! Bouncing on a trampoline at 6.45 pm!! That's the time I used to go to bed pre-op!!
Kathleen Cave
Hi all,
I'm just writing to say I am feeling fine after my op at Sheffield.
I saw Mr. Saba on the 15th who said 'Job Done'.
I would like to thank you one and all for all the help and support I have had, I did nearly say 'Sod it' but you all and Robert kept me at it and glad I did.
I haven't felt this good in a while. We went to our local eatery and I had a couple of white wines. If we can help other para sufferers Bob and I certainly will. I know I am not out of the woods yet but I am getting there.
Kathleen xx
Read Kathleen's story written by her husband Robert Cave on our About US page.
Michelle Somerston
Happy post... 13 days since my parathyroidectomy. I'm feeling great, appetite back, bones don't hurt, head clear, energy back. I now have osteoporosis and am focusing on improving that. My scar is amazing and only a bit sore. My tumour was about 1.5 cm (now confirmed) and apparently had been happily growing for years.
This is the second tumour I have had in 16 years. (Look to the left and you can see my original scar) My life is mine again and I'm in charge... I'm very happy. So for those of you out there who cant see the way out, there is DEFINITELY light at the end of the tunnel. Sending light and love. Ps. Fausto Palazzo was my surgeon, he is awesome , but I said goodbye to him today and hoped I would never need to meet him again
Susan McAuley
3 weeks post op. Back for follow up today. Confirmed benign adenoma. So relieved. Small lump behind my scar - massage with oil and should go.
PTH range (1.6-6.8): pre op 7.2 intraoperatively tested; 2. Calcium pre op was 2.74 next day post op 2.4mmol/L.
Bone ache had gone immediately. Thirst, knee, and feet pain, brain fog, anxiety, weepy - all GONE. So glad I went ahead with the surgery with Professor Con Timon, St. James Hospital in Dublin.
Amy Louise Fish - 10 October 2019:
World Mental Health Day
I just want to say a HUGE thank you, to everyone on this page, each question asked, each question answered!! Every single little thing helps one another in a massive, massive way !! It's just amazing ❤️
I feel so much more confident and able to stand up for myself, we have a voice when it comes to our health...
It's ours after all, and it's what gets us through life!! The need to believe in yourself, is as important as the 'want to believe in others'. Happy world mental health day.
Lydia Griggs - March 2019
I thought I would do an update post as I’m now 1 year post-op. I know these posts helped me pre-op when I was feeling so unwell. The day after my operation was honestly the happiest I had felt in years.
I think I’m one of the lucky ones, as my recovery was smooth and I only had to take calcium tablets for a few days. I woke up the day after the operation and instantly felt better, I literally woke up and cried because I could think clearly for the first time in years and my eyesight was sharper, it was as if everything was in HD.
My main symptoms pre-op were brain fog, chronic fatigue, bone pain, kidney pain, sweating, bouts of sickness and tummy problems, anxiety, depression, pains in my neck and my weight (I had put on quite a lot and couldn’t lose it). Apart from still carrying some weight, but think this is partly due to having PCOS, all my symptoms have gone and I am so positive about life - the change is amazing and my family can’t believe how different I am. It goes to show this disease really can turn your world upside down!
20 August 2020: I’m just reflecting on the last few years (had my op over 2 years ago) and I just wanted to send a message to say how amazing this group is. Some of you are such beautiful souls and dedicate your life to helping people navigate the maze that is hyperparathyroidism.
Chris Veats
Critter successfully evicted! I haven't got any post op numbers yet but Mr Zammit said the offender was quite big. Blood pressure had been creeping up over the years since I started this journey pre op 161/100 latest reading 118/79. Mr Zammit is amazing and such a lovely man. Thanks all for your kind words and support. I would not be where I am right now if I hadn't joined this awesome group.
Follow up appointment today with the wonderful Mr Zammit at Brighton Nuffield. Dressing removed, neat scar, normal calcium level 2.2 for the first time in years. Adenoma was 2 cm, more like a bean size than a grain of rice. Just need to have my bloods checked again in a few months with the original endocrinologist and annual bone profile tests. Bone pain much reduced. Muscle spasms gone. Blood pressure 128/79. Feeling very pleased and no regrets about getting the loan to go private. Ironically I got a letter from my Hospital advising me that they are referring me to the Ear Nose and Throat Surgeons after having refused me surgery at the last MDT for the reasons that I had no end organ damage to warrant the need for surgery. There are no words.
Sue Hart
23 August 2020; Eight days post-surgery! No brain fog or low mood. I can speak and think again and I don't want to throw things across the room or at my husband!!!
No weeping all day!!! No acid reflux at night. No frequent urination. No feeling of a lump in the throat. No hoarseness. No terrible thirst.
I'm laughing, making plans, and I'm not making lame excuses for not wanting to see friends or family.
I'm cooking! Three weeks ago, I couldn't even put my shopping away that my husband had collected from the supermarket. That was a very low point for me.
My skin is already improving ... sandpaper skin for at least two years.
Normally I was up every hour or so for the bathroom! Then awake for hours on end. The bed felt uncomfortable so I usually ended up just sitting on the bedroom sofa or the edge of the bed ...hanging my head in despair. Last night I slept for 8 hours and my bed was immaculate when I woke!
My husband can't stop smiling at the difference in me. I was so desperate that I had talked about leaving him because I felt such a terrible burden. We've been married 51 years!
Yes, I still have bone pain and long-standing back problems, but I feel like "me" again, so I can cope! Hoping the hair loss improves too, but if it doesn't, I don't care. Even though my diagnosis was a long time coming, I've been very fortunate that things have gone well for me since then. I really hope this post helps some of you.
Chenielle Jefferies
'Hello Sallie, and all my other paratroopers. It is suffice to say that March to May were months when I thought it was the end. Had no energy, felt dreadful and hopeless. I couldn't even keep up on Facebook. By this point, I was beyond caring, as I thought that I should reach a place of acceptance and get on as best I could with what was left of my life.
On the 21st of May, I had my third parathyroidectomy in 24 months. And apart from a laryngeal spasm on extubation which caused my lung to collapse and emergency chest drain, the parathyroid operation went well. Despite this complication, I felt so much better, and people could not believe how much better /different I looked. All my bloods were within normal range the morning after the operation and subsequent tests done 10 days post-op have remained stable within normal range. Three weeks on, I continue to improve and although the incision had to be much longer and deeper than the previous two operations, I have had no pain, just a little discomfort when turning my head but this too has gone.
My body aches have gone with the exception of one morning, my frequent night trips to the loo are down from 7 to 2, so my sleep has also caught up. It has been a long and arduous journey and will require constant monitoring, but for those of us still to have their operations and to feel better just hang in there and you will get there. The surgeon says that hormone regulation can take up to a year to function properly. I just wish I could bottle this feeling and send it over the net to you all.
My very grateful thanks to Sallie and the other administrators for your constant and dedicated fight on our behalf. I shall remain in the group as I would like to support those who feel that there is no end to all this and could do with a hopeful post now and again. TO INFINITY AND BEYOND!!
Update July 2022; Sadly, Chenielle was soon back where she started with adjusted calcium of 2.93, on 60mg of cinacalcet and an endo in Eastbourne who wanted to watch and wait for four months before offering scans. Chenielle got a second opinion from Shad Khan in Oxford, who operated. to be updated...
Tracey Greer - January 2019
Tracey waited thirty three weeks for her surgery and had to cope with three cancellations but knew her surgeon Mr. Townsley, at Crosshouse Hospital, specifically wanted to do her surgery himself as five parathyroid glands had been located, four enlarged, the fifth confirmed with FNA embedded in a thyroid lobe. With calcium at 3.2 and struggling with severe symptoms whilst having to work long hours; a mum to three children between 6 and 15, she was feeling quite desperate for surgery when she finally got her date 17 January 2019.
'I can’t go on like this. I had to quit my nursing degree as I still have my business to run, my studies, family etc. I couldn’t concentrate or remember half the things we covered in classes. I honestly feel like this disease has taken over my life.'
15th February 2019: I'm 4 weeks post-op and my scar is fantastic!! It’s almost invisible. There are so many symptoms that have gone, some still here and some new ones have arisen with the thyroid issues I’m having just now. Thanks again to everyone in this group.
January 2020 update: 1 year 1 day post op:
I went from struggling to manage 3/4 days at work a week to now working 6, opening and running my own salon.
I still have some “normal thyroid issues” but the difference in a year is unbelievable!! Anxiety is now more manageable. My rage and moods have almost gone (I’m female I still have some). My energy has increased tenfold (I go to a gym 4/5 times a week). Migraines have settled. Kidney and gallbladder Flares/stomach pains have gone.
Urine infections none since op!! I haven’t had any repeat pain prescriptions and still haven’t finished my last ones. Rarely do I get bone/skin/hair pain anymore. My teeth/gum deterioration has stopped. I haven’t had shoulder pain or issues since April.
No more mouth ulcers. I haven’t had an afternoon nap since goodness knows when. M sex drive has returned. I am fun to be around again. These are all but a few things my family/friends and colleagues have noticed
Sam Blakey
Finally telling my wider circle of friends I have this illness was a big deal for me. As a self employed personal trainer, I have had to keep up appearances and continue working in a role that demands a certain level of fitness, even when sometimes I have had to drag myself out of bed feeling like I have aged 30 years:
“I have been struggling with a medical condition for over a year now. My GP was brilliant in her determination to help discover what might be amiss, but I discovered that whilst there are many good consultants, sadly there are some poor ones too. I have learned that some doctors, when they don’t know the answers, instead of going to look for them, dismiss what you say; not because you are wrong, but because they are not up to date with all the research and think they know it all. In two weeks I am having surgery to remove a tumour on one of my parathyroid glands. It’s benign, but due to raised levels of PTH I am symptomatic; severe fatigue, IBS, anxiety, mild depression, joint and abdominal pain, insomnia, cognitive impairment and brain fog, it needs to be removed. Because my calcium levels are not excessive, one of my consultants dismissed my symptoms, despite research indicating many patients are symptomatic whilst having only moderately elevated calcium levels. The memory fog is bad, but the fatigue is the most crippling symptom; between work I am most likely to collapse on the sofa, for hours at a time. I am not alone. I recently joined a FB group for PHPT sufferers and have discovered many of them have also felt their condition is too easily ignored.
Fortunately, I found a consultant surgeon to operate on my parathyroid, whose reputation precedes him as a great doctor. He was patient, not at all dismissive and very understanding. Most of all he heard me. To listen, reassure and make a difference are attributes we should all strive for, whether in the medical profession or elsewhere. As practitioners, it’s also important to stay up to date; to read avidly and stay abreast of research and changing practices. It’s what sets us apart from the ordinary. It’s also what makes us better at our jobs. When we think we know it all, we stop being the best we can be.
Job done. Mr Agada removed an adenoma the size of a blueberry, which I thought sounded quite pathetic, but apparently that’s quite an impressive size. I currently look like Mrs Frankenstein according to my kids! Bloods have come back and my parathyroid levels are 20 times lower already, which is a great result. Just got home and am sore and tired but very happy to be on the other side of this, hopefully. Thank you for all your kind wishes and advice over the past couple of weeks. Wish I had found this support group months ago! .
DAY 2 POST OP: I have had pins and needles sensations all over, but particularly in my hands and feet and a ‘furry feeling’ in my face. Since my calcium levels were apparently not particularly raised throughout, I’m wondering why am I getting such pronounced sensations related to calcium? Apart from this and soreness around the wound and in my throat I feel fab. An immense sense of relief and I’m simply dying to go for a run which is certainly a new sensation!
4 weeks later: Last night I gave my testimony of the past three years, including my battle with my parathyroid to 60-70 women at my church. So that’s another large group of ladies who will know what to look for if it happens to them!
p.s. still full of beans - it’s like Eeyore morphed into Tigger!
For anyone with concerns about staples, (which hold that incision tightly in place), the 2nd photo is Sam exactly 1 year after surgery!
Alison Ayres
Five days after her parathyroidectomy, then eight months later, after a four week wild swimming tour of Europe.
Read Alison's story on our Case Stories Page.
The difference in 'Quality of Life' is astonishing for many post op, and Alison is literally glowing with health which is incredible and lovely for us to see.
These pictures inspire us not to give up fighting for surgery.
Lisa Greene
'Well, thank God for that.
Parathyroidectomy successful. I am so thankful right now. I don't have any details yet but it was a long day with a few hiccups but the main thing is they got it wherever it was.
Feeling thankful in Dublin.'
Lorraine Shuker
At six months post op.
ENT surgeon Mr. Ahmed Sweed, at Leighton Hospital in Cheshire impressed us greatly with this tiny incision.
Julia Ellins
Dear All,
Today marks one year since my surgery! Pre-op; I lost nearly a stone and a half, despite still eating normally. I had awful fatigue, bone pain, constant thirst/peeing and brain fog.
Fast forward to today, I am back up to my normal weight, have my energy back and on the whole feel great!
Fast forward to today, I am back up to my normal weight, have my energy back and on the whole feel great!
Sheryl Butler
A positive post for those who might need one. 6 weeks today post op. It's flown. bone pain and fatigue have gone. I'm back at the gym, eating clean and healthy foods. Realistically I'm tired if I don't get enough sleep and ache if I do too much at the gym. I'm 43 its life. I can separate the illness with age. On the whole, I feel so much better. That weary feeling of being unwell and not knowing why has gone. My stiff hip has gone. I can lay on any side I want now. My bloating has gone ( although I have gained 10lb), this is not because of the op, because I have been doing less especially in the 2 weeks after and eating more of the naughties that make us feel better (the get well soon gifts of choc biscuits cake lol ) so my fault and Xmas. but what I will say is you have to be positive. If I was negative when I had a niggle I would focus on that and not see how far I have come! we concentrate too much on the bad. turn it round measure good days instead! Sending you all positive love x
Thanks to Nik Thomson, his surgeon Justin Morgan and team, for taking these amazing photographs of his parathyroidectomy for our website. The adenoma attached to the parathyroid gland was 1 gram in weight
Points West News Story with Bristol Parathyroid Surgeon Justin Morgan discussing Primary Hyperparathyroidism
Amanda Botterill
Pre op photo October 2016
5 Days post op (April 2017
September 2017 ; Amanda had a keloid scar. Her surgeon prescribed hydrocortisone cream and silicone dressing. She was referred to a plastic surgeon. As you can see from the picture above, after three appointments, with injections to the surrounding skin, had an amazing result.
Jane Allen Ex-Askew June 2017
Some fleeting moments of my usual hand and feet pain but the foggy hard to concentrate brain symptoms have gone! I can actually read instructions today without re-reading several times
Leigh Harrison McMichael
Mom and I are both out of surgery and doing very well! Before spilling the details, I just would like to say thank you to everyone- for the support, the hoards of information and late night 'para comradery.' Truly, without this group I would not be sitting here today with this awesome incision on my neck. (I wish the scar would stay- I will wear it proudly).
Mom and I both had two problem paras in there. Hers were full on adenomas and mine were very enlarged and on their way.
No doctors believed me. When I struggled to pick up and care take for my now 19 month old daughter I was told I had postpartum and needed to 'take me time for four hours per week.' I missed out of a lot of precious fun with her because of this horrendous disease and I'll be working on accepting that as time goes on. Extremely thankful to have the chance to make up for lost time this summer when I am no longer couch bound and bed ridden.
Jenny Rossington.
Yes, this really is the same lady 12 months apart. The photo on the right is Jenny 8 months after her parathyroidectomy. Having met Jenny before her surgery I am astonished at how well and how youthful she is looking a year on, but I can really appreciate just how poorly she was before her surgery.
John Dennick.
Surgery December 2017 QE Birmingham. In September 17, he wrote: 'All I know is any trace of the person I used to be Is gone I don't want to talk to anyone, feel black and empty at the moment'
December 17: Hi all I'm on the other side! Surgery took about 2.5 hrs. The adenoma found on ultrasound was 4 x 3 cm like a golf ball!! He found a second adenoma hidden behind it that was about half that size.
Read more about John in Case stories
I really appreciate your feedback. If this site has helped you to get a diagnosis and treatment, please let us know, by filling in the contact sheet. Thank you, Sallie.
Dawn Austin lives in the UK but struggling to get a diagnosis she ventured to NPC Florida to get her life back in January 2017.
1 hour before surgery.....
10 days post op!
Carolyn Jenkins: June 2017
Steri strips off! Healing well, can't quite believe how small the incision is given that the para measured 4.5 cm. Six days post op and feeling a little better each day.
Liz Hicks
Liz photographed the healing process of her incision to share with us, which we hope will reassure anyone who finds themselves with a larger than expected incison, and metal clips.
'Day 6 post op, and totally amazed at the speed my body is going at to heal itself.
A huge thank you to everyone in this group who has supported me along the way and to all those still waiting and fighting don't give up it will all be worth it in the end.'
See how well it healed in 3 weeks! Amazing!
March 18, 2015: Alexander following years of kidney disease and kidney transplant had surgery in Florida:
Good morning to all here. It's been five days since surgery and the first few days had leg pain, hands, and fingers, but with the calcium pills and some here mention a cup of milk; has helped greatly 😀 some here also mentioned being wired or jittery and I have felt it last night and a couple of times before really weird. Also, my blood pressure has been lowering.
I know it's going to be a lot of changes so I am OK with that. Overall I am happy that I made this move to go to Tampa.
I wished I did this sooner. I feel like firecrackers have been lighting off and just thankful for the NPC for all they do and for this page here that connects all walks of life worldwide with the same issues and we can relate and give each other encouragement to over come this dreadful disease.
May 19, 2016:
I know it's been a while but never forget the love I got from this great group.
Well my last PTH was 90 and calcium 9.2 that's where I am. I want to give encouragement to those that I was able to go full time to university and 4.0 average all due to the fact I got the surgery and can focus and I was able to start back surf fishing. Never give up and push and fight to get back to feeling great.
Val Danvers-Wright:
I am 58. I had a parathyroidectomy last year. I am doing an Open University degree which I started prior to becoming ill. The course I studied whilst feeling dreadful before surgery took 3 times as long, because I couldn't understand or retain anything. I did the exam feeling like I was on tranquillisers - completely brain fogged and confused (and the bone pain made it hard to sit still and concentrate too!) I just scraped it but they upped my grade because I submitted medical evidence.
The course I did this year, after surgery took far less time. I understood much more easily even though it was harder, and felt totally different in the exam. I was completely focused, able to plan a strategy for answering the questions, and my mind felt sharp again. I got a good pass. It's hard to describe the difference... it's like removing the cotton wool from your brain!
Meg Woodcraft:
I'm 7 weeks and 2 days post op. Brain fog lifted immediately!! The lights went on and have been ever since...
My focus and clarity are back and I feel able to engage socially. I drove to Bristol and back from Essex the other week. Something I hadn't done for a couple of years..
